Princess Rainbow

Sorry for leaving you in the lurch again it's just that I haven't had much to say! Fliss came round yesterday and we had fish and chips well she did, I had saveloy and chips. So that was good we also watched 2 Christmas DVDs. So all in all we had a good day

Well what can I say about today! I'll start with this the morning started okay. But by the after noon the day went really wrong because I got my dressing gown court in my wheels and I had to phone someone to come and help me get it out of my left wheel. In fact today wasn't all bad  because I had UCB on already playing on the PC and I think because I had UCB I know I didn't have to say anything I just hope they got whit nest to and challenged! because I don't like forcing things in front of peoples faces and so I hope that helped.

Sorry that I didn't dell you in on what I did on Wednesday! Well I was with Becky and we went bowling to let her get some practice in for when she goes bowling tonight; Anyway I've had a really strange at Strode because the Coach House had to call an ambulance in for one of their resents and I had a lump in my throat because I don't like it when anyone has to go to hospital! luckly she didn't have to stay in for very long anyways I have to stop there for now because I've got to get dinner. On a lighter note I made lunch at strode today and it was paster dish and it was horrable and the pudding was worse LOL!

Today was boring because all I've done is washing and get my hoist serviced mind you Fliss is coming round this evening to get her Christmas present so that should good. Oh and I sobed my eyes out last night because I watched this really moving DVD.

Today I haven't gone to Church because again I didn't get to sleep till about 2 and I'm also getting a bit of a cold which is a bit of a bomer I think thats part of why I haven't been sleeping! anyhow I'm sorry that my blogs not that exciting I just don't feel up to writing much.Theirs one thing I can say I'll be thankful when I get my new front door and my new windows because then it will be warmer in here!

Can you believe it's November already because I can't! I feel like this year is going so fast anyway today I haven't really done anything which is good for me because that meant I could relax. Oh I don't think I told you I got a new computer so now there's no reason for me to slack on my blog is there LOL! Oh yeah I was meant to give you an up date on what happened at the Hospital last week, well they are not gonna do anything with my hurneyer at the moment because they said that the aneima has nothing to do with my hurneyer to honest in some ways I was wishing it was because then I could have space from any Hospital.

well I've had a trying morning this morning because com care phone up and said that they can only put me to bed tomorrow evening at seven 0,clock and Mum and I found that unacceptable because I have dinner then and any later or earlyer than that my digestive sistem gose up the sbout.

Today is my last full day in March till Christmas now. So last night after the possible lodger and her Mum went home, Mum and I watch home and away before we the three of us went out for our last chines before going back to London to drop Misha off in Northolt before going back to Kent. It being the last day I hope my hub comes today for the Internet at home because I'm coming off of 3! This afternoon I went to tescos with Mum for some chilly conkarnay to make when we got home, I went to get changed for bed when we got home while Mum was slicing the vegetables to go with the chilly for dinner and she sliced her finger. So she went to the doctors and they said go to ANE but it wasn't that bad so she went to boots to get some stairy strips!

Today there is a possible lodger coming to look round the house. So we'll see how that gose Paul came up to be with us for a few days before he takes Mum, Mish and I back. Sorry but thats about all I've got for you this evening

Today is my birthday and I've had lots of nice presents to open which consisted of a new Betty Boop doovay cover which my sister had bought me, and that was a present that I loved. Oh you know I went to London yesterday to see the Lion King! I thought it was really good! But it was a bit of a night mare getting there because nearly all of the people that were in London eather didn't see my wheelchair or just didn't get out of the way quick enough. Anyhow about the Lion King when we finaly got there was really good, the bit that I like the most was when the monkey hit Simber on the head with her stick. The Lion King finished at about five so we then went to china town where we met Sarai in a chineses restront. where we all end up having speshle house noodle I took a while eating mine because some of my food got stuck. When we left the restront we found that we had a parking ticket for not showing the bage properly but that was rubish.

I've finaly arrived in London after it was all touch and go yesterday weather I was going to make it here or not because you know the wheelchair people came on Wednesday, well I thought that they checked the whole of my chair over because of me going on holiday but they didn't. So when it came to the day Mum came to pick me up she found out that one of the handels was really hanging on by a thread. So we had phoned the wheelchair department and we were really quite lucky to be seen as quickly as we did because they were all just about to go home. And if we'de rang up a few seconds later we would have missed them. So I'm really glad that we didn't. cause it would have made my hoilday horrable I've got to go because I'll  be late for the theatre other whys and I've got have lunch before we go.

Monday 19 September If anyone from the Com care team ask me if I've had a good day or if they ask me first thing in the morning tomorrow when they come to get me up, I wont beat around the bush and say oh yes I have or yes I did have a good day because all in all that would be fibing wouldn't it! I will start from this morning well it started off well but from nine thirty onwould the day started to go a bit wrong because first of all the person who was ment to be with me to help me with shopping didn't turn up at mine then my lift turned up to take me without her here! And so I was getting worryed. Anyway I had to get on the bus and we had to go because he had to pick other people up. We aproached the second round about and the driver was going pritty fast by this time and I was trying to hold on to one of the seats as titely as possable but in the end that didn't work because my chair fell on top of me! The driver didn't think he was going that fast but beleave m...

hey guy's thanks for joining me if your still reading my blogs! I know it's been a while but I haven't had much to say but now I've got plenty to say I'll start by saying this we've got a new cat called Misha and she is so cute. She had a bent ear when Paul first found her but it's straiten out now and I can't wait to see her.  I'm going on holiday next week and I get to see her then. Anyway did I menchon that I'm getting insterlation in my bungerlow soon so I'm looking forwould to that because I'll be a lot wormer. Anyway remember when I said I was going for a CT scan well I went and they had to enject this blue die into me and the only way I can desgrive it is by saying it like this. When they enjected the die into me the die made me feel like I was having a hot flush and it also made me feel like I was wetting myself laugh out loud woops laugh out loud that was on personal levle I'm sorry you didn't want to know that did you

finealy I've got on here after a busy few months. Oh I had a CT scan on Monday I don't get the resaults for ten day's but I think all is ok at lesst that part is over with I just hope they find something small because I want the doctors to make a dition about my iron tablets. Oh and I'm having Fliss round for a takeaway on Monday which I am really looking forwould to it.

Hey, This is only going to be a a quick one today because I'm going out for a barbe if the whether hold up. You may or may not have heard from my Mother that my older sister had a few to many drinks lastnight while she was out with some of her work mates. When Mum told me that my sister was drunk I just laughed and laughed because I have only ever seen sarai drunk twice before and thoughs times were with family. This is what I don't think I don't think Mum has had to pick her up before when it's been a work do.  Mum was saying that it was very funny seeing her like it I've got to go but I'll continue this a bit later.

From now on I'm going to be doing my blog on Saturday's only because then I can catch you up on what happend in the week insted of doing it day to day. Well I'll start with my first week back at lifestiles I got back from my holiday as you know and on the first day back to lifestiles I was told that it was all going to change starting from the day I got back. I got back on Thursday and I got put into art and not that I mined art but I prefir cooking better.

I'm sorry it took me a while to catch up with my blog I just haven't had anything to say. I've just come back from my holiday and for me it went to quickly, Oh when they did my colonoscopy they couldn't find anything. After coming back from the hospital Ispent one week at home with Mum and that was enjoyable and 2 tthweeks in March. Which I did not want to leave this time but I had to because Mum and Paul had hospital apointments themselfs. Well Mum had her apointment the same day that I had my doctors apointment, My doctors apointment went fine the doctors going to chase the hospital up for me. But I wish I could say the same for Mum shes got something wrong with her liver shes going to need more tests so we'll see how they go. I spent the last week of my holidayat home. I haven't really done much just went out on Thursday to get Mums birthday present and my sisters birthday card.

I'm so glad I'm back I'm sorry its been a long. Anyway I watch the soap awards on Wednesday and like I thought eastenders wone as always. Oh I got my hoist today.

Well I was hoping to go to the cinma to see hop today. But poor old Amanda is off sick I thought she looked ill on Monday. because she was ment to be on training this morning and come to mine this after noon, But Paul came and told me that Amanda was ill. So I can't go to the cinama with her today So this after noon I'm in doors.

To carry on from where I laft off on Sunday, yesterday just as I thought we would, we picked that mowny women up to go to tescose if thats how you spell it. Anyway I nearly fainted because for her she was very polight again if thats how you spell it. Don't get wrong she still stank. But I guess she can't help it. And you don't want to hear about the rest of yesterday because it was the same old same old. This morning I had 2 phone calls one was my O.T. saying that man who was due to be coming with her today couldn't come to mesure my kitchen. So bouth of them are coming tomorrow insted. And the second phone call was the doctors just to confirm that I can't have a smere test. But since then I've had another phone call from the wheel chair repair servce. They want to come come and servce my chair tomorrow. There gose my plans.

Today is Mothers day so I'm going to phone Mum later to see if she likes her present. Anyways I'm not getting dresst today because this morning I woke up with a head cold and I feel like having a relaxing day, So to Fiona, Mum and Granma have a fab Mothers day. Mum phoned me just now and said my sister had bought a present with the same words on it as mine. I just laughed because the thing I didn't know was that my sister and I think a like. I think Mum is having a good day so far. Oh did I say how much I liked City Church they are really friendly. I know this is going off the subject but every Monday's I go shopping on a Kent bus, And I'm not trying to be horrable or nout, but she is rood and she stinks she may or may not be able to help it but I really hope someone else is able to pick her up tomorrow. Oh by the way I'm feeling a lot better than I did this morning.

Tomorrow is Mothers day and I can't wait for Mum to phone me and tell me how much she likes her present. I'm sorry this is a short entry but I really haven't got much to say today.

I'm sorry I haven't been on here lately to tell you whats been happening. I haven't been well again with my stomic. But don't worry I'm back for a while now so just to let you know I haven't forgot to write on here I also haven't had much to write on here either. This may or may not make sence but yesterday I had some people come round to see if they could fit a over head hoist in my room. So that I can get in bthe shower savely.

Really now is the first time I've stop today, because lastnight my carers left the tap closed. So the floor was wet by the morning and belive me I was not a happy bunny. Today I've spend the day trying and cleaning my bed room carpet and I know my Mum phoned me this morning and said to check every evening to see if the tap is closed but its not easy since I don't know which is closed and which open on my bottle. So thats what I've been doing all day. That and having stumoc cramps so all in all I haven't had a good day.

Yesterday was red nose day and I went to lifestyles in my Chelsea footy shirt because we had to go to lifestyles in bright cloths. In the morning we decorated fairy cakes with Maggie and I think we razed about 84 pounds, in the evening I watched comic relieve. I've forgotten how much they razed but I know it was a lot. I also forgot to say that the Friday fokes group and I went to the pub. Today its just same old same old.

I know last nights blog didn't make sense but that was because I was tired. So I must apologise for that fact anyway I'm not going out anywhere today because I've got a care review which will be nice and simple we hope or I hope. Oh by the way I still haven't heard from the hospital about my second attempt at them doing the colonoscopy; May be I'll hear today. You never know, I'm just getting board of waiting for an appointment now. who ever said good morning let the stress begin was right laugh out loud. well I've had my review and I think it all went well except I'm not very keen on the person who did it because she was that wrote in my communication for com care that she suggested I shouldn't go home for Christmas and if I'd Liston to her I could have died. She said that could she ring Mum to preppier her for what she was about to see. But what she meant was could she ring Mum to tell her not to come and get me. I think that Darn is a lire and...

On Friday I went to life stiles and I found out that my favrate carere had left Strode Park. In some ways I think I'd have been better off not knowing that hed left Strode than having to find out that he had left my people asking at lesst they could have waited till I was out of the  room before they asked. Anyhow I don't blame him for leaving, Heres what I think I may be wrong or I may right but only God knows that. Anyway I think he left because it all got a little bit to much for him working after coming back after being ill and I know that  hes not fully better bless him and that he can't come back because of that fact. But I know this for sure I know that I and everyone else that have worked with him closely will miss him very much at Strode. I am not saying his name on perpours. Anyway enough about that, I spent all weekend serching on line for pads only for them to be sent back my Mother because they always the wrong ones that I'd ordered.

I know I haven't been on here for a few days, So I must catch you up.  I went to see Gomeo and Julet yesterday and it wasn't as good as I thought it would be. Anyway I know I'm going back a week but the sety came in the end which I was pleased about. But the thing that I wasn't pleased about was the fact that Argos just dumped the sety in the middle of the sitting room for my Mum to unpack but you would have thought that they would have unpacked it for her. Because she has got a bad back.

I know I should have wrote my blog on Thursday but I was to tired to write it then. So I'm trying to catch up now on Thursday morning Paul came round with Stu and that was kind of good but I really wasn't exepecting them to come. So it sort of court me out a bit anyway they came round and Stu had a drink of diet coke then they left. And in the after noon Fliss came round and we went to the Harvister and Fliss had chicken I can't remeber what Mum had but I had fish and chips. For pudding Mum and Fliss had icecream and because I don't like icecream I had trecal spunch with custerd, When we came home Fliss had a cup of tea.

To continue from where I left off erm I continued having a really bad stumoc. So I got rushed into hospital because Mum and I thought I had Melena, Melena is when your stools are also very black but sticky instead of just black like the iron tablets make my stools. So I went into hospital and got put strait onto a drip so they could get some fluids in me. The doctors found out that I didn't have melena and that I was just dehydrated from having the runs. They also said that they are going to leave the investigation to  do with the anemia to Canterbury Hospital. Talking about Canterbury Hospital they phoned up the other day and they said that they can do the colonoscopy while I'm asleep. And I've got some more good news the nurse at the hospital has asked for a side room for me this time to save me embarrassment. That was on Montut day, On Tuesday Mum and went shopping, in Canterbury and we had a good day I think Mum bought some shoes  and I bought something to fix my play...

Where do I start well I went to Canterbury hospital after shopping like I said I would, But St Lorant's ward weren't expecting me at all. So I arrived at the hospital  expecting their to be a bed for me when their weren't any available but luckly there was a bed available because someone was being discharged just at that moment. So there was finualy a bed but I wasn't going to go in that bed because there was a women in the next bed bless her she was screaming and shouting for help and they were just ignoring her, I mean bless her she did have dementia but even so I wasn't going to stay the night in that five beder because to be quite honest if Idid spend a night in that five beder I would not have got any sleep. Anyway Mum would have felt more happyer giving me the Moviprep at home than me having to be in hospital to have it, So we came home. Anyway after all that the Moviprep didn't work the first night that I had it but it did the next morning. And I was as s...

I can't stay on my blog for long today because this morning I trapped my figger in my helping hand and it really hurts. I'm not going to say what I'm doing because its same old same old, But yesterday was a different story I went to life stiles as usual on a Friday but this Friday wasn't just a normal day, because yesterday I phone the council about the roads outside my close my because they are holes everywhere in my road. Anyway just now Mum rang and laughed and laughed at me trapping my figger in my helping hand.

I haven't been writing on here much this week and last week either because I've been in pain with my kidney's, So I haven't been able to concentrate and I've also been so tired. because I've had to stop taking my iron tablets because of having the colonoscopy on Tuesday after noon at three. Anyway today I went to the cinema and saw yoga bare. I was going to see black swan but I decided against it and saw something funny instead. Oh yeah I forgot to say that I've bought Marly and Me, The bucket list and 2012

So to carry on from where I left off yesterday. I went to the hospital and they said that I wasn't able to have the colonoscopy because I hadn't  stopped taking my tablets seven day's before it. So that means that I need to go back into hospital not this week coming but next week. I'm not aloud to have any fruit or veges, brown bread or Any fibers really for three day's. Before my colonosocopy because it could tamper with it. Anyway I've got to go and have lunch because I've got to go and have a blood test at one. I've had the blood test and to be honest it didn't hurt as much as last time.

Today is the day I'm going into hospital to have my prep for the Colonoscopy tomorrow morning, but theres one problem I might not be able to have it because I can't bend my legs right up. So unless they can find another way of doing it or running some other tests while I'm in there. I'm going to have to come home but I'm sure that won't happen. Anyway if so I won't be able to write my blog for a few day's.

I'm writing my blog this morning so that I can get some rest this afternoon not that I will but I'm hoping to. This is only going to be a short entry because of my arm hurting from last night. See I was silly and you can proberly guess what happened next, Yes I had my left arm stuck in between the bed rail and my bed. So I don't know how I managed it but I managed to phone my carers and they had an ambulance car come out to me at half eleven. To get my arm out from in between the bed and the rail so I finally went to sleep at midnight. My arm is a bit sore this morning, but it will just be a bit brused. I know one thing it will teatch me not to pick things up in the middle of the night again I would prefir to wet myself than to get my arm stuck again.

I didn't get to watch the Cleveland show in the end because I fell asleep. Anyway I'm not going to my normal Church today because I want to go to a Church where by I can get more involved in bits that the Church is doing, IE getting involved in a small group. What I mean is I don't just want to come and go at the end. I  mean I want somewhere that I can call home for good. Vine Yard is my home but I seem to be wanting so much more now a day's. That Vine Yard is just not enough any more, Don't get me wrong I have made some really close friends there and we do keep in touch using face book and that. Anyhow when Mum and Dad come down not this time but some other time they are going to take me to City Church, Which I am really looking forward to, Because may be I could get more involved.in Church activates. This afternoon I watched supper Nanny that was good and wife swap which was also good. Then I emailed Zoe about two single mattresses, For m...

Today I haven't really done much apart from fix my hover, do my washing and tidy up. same old same old. Like every weekend, I do sometimes go out on Saturday's though but not often. Because Saturday's and Tuesday's are the only days really when I can potter round the house and tidy what needs to be tided. Oh yeah tonight I'm watching the Cleveland show at ten. I know I know what a sad life I leed LOL.

Today I went to Strode yet again and I made a cake like yesterday but bigger. Robin went home in the afternoon because he wasn't very well, When I came home. I received a letter from the NHS they wrote to confirm that I've got a bed over night on Wednesday the 9th of February to be prepped  before my colonoscopy on Thursday the 10 of Feb.

Today I went to Strode and for once Tina didn't grab me for one of her little chats with me. But I did say to her that I wasn't going to be in the coach house all week next week and she was fine with that. I also face booked Rob last night to see how he was and he hasn't wrote back to me. so what I'm going to do is try to face book him again and have one of my chats with him and if he writes back then all well and good but if dosen't then I'm just going to leave him to it.

I haven't got long before I start dinner en fact I've only got a few seconds. Anyway today I spent nearly all day waiting in for these people to come and take my sety away. And now its gone I can't wait till the sofer bed comes because now my sety has gone, My bungalow feels so empty. I didn't realise how big the sety was.

This morning my best mates Mum came over and helped me sort my garden out.So now all I have to do is weight for the plants to grow, the bit I enjoyed was getting the leaves out of the flower bed so that I could do some planting. Oh I forgot to say that my sofer is getting pick up tomorrow because I'm getting sofer bed.

Today I went food shopping but there was one difference about today and that is the fact that I forgot to book the transport that normally takes me food shopping. And so on Saturday I realised that I hadn't book it so I book a taxi instead. Anyway last week I watched the television awards and I wasn't excepting  Eastenders to win an awrad for best soup I really wanted my soups to win.

To caring on from my last entry that I did. I forgot to say that when I had my blood results back they were over 12 percent which is really good. This week is the week after I went to the doctors for a blood test and I can't believe how quickly I've got a hospital appointment. To caring on from where I left on on Thursday when I went to the Ash ford Hospital. I went to Ash ford Hospital for my appointment they said that I had to have a tube up my bomb with a small camera on the end of it to see if there was something going on up in my colon. Away the doctor said that hes got a feeling its not cancer but he said they've got to check encase it was the thing that was coursing the anemia.

Today was a very boring day all I did was tidy up and do my washing oh and I a letter from my doctor saying that I need another blood test. Sorry this is a short entry I really don't have much to say today. I mean the reson I had such a boring day was because it was raining and I didn't want to get wet.

Today was my second day back at the coach house and strode, I felt quite happy knowing that the boss of the over all care in all of Strode. Was taking care of the Tiena situation. Even though it took me till the evening to get hold of him to say thank you for looking in to  it for me, I maneged to get to talk to him as well. As saying thank you for supporting my family and I through this difficult situation that I found myself in with my helf. I also got to talk to him about Tiena as well and he made me feel so at ease about it all. That I wish I went to see him sooner. And he asked me to do him a favour that if I have a problem again with either Tiena or Zoe I'm to go to him straight away. He thought I was worried about coming to him but I wasn't.

Well what an eventful first day back in the coach house I had today not. Because first of all I went in the computer room and that was okay; But before I went to have my brake, Tiena the deputy manager of the coach house spoke to me over this big matter that she and I had about the fact that I was looking pail before Christmas. I mean I except the fact that I looked pail and I except the fact Tiena wrote a letter for me to take to the doctor's but what I do not except is the fact that Tiena had said I had better get myself checked out by the doctors to  rule out cancer. She may not remember the fact that she did say you need to go to the doctors to rule out cancer.

Today was very boring because all I did was tided  up and my washing this is my first day here on my own after being ill and I think I've done quite well. Oh I have done something today I've spoken to Mum on skype and she said she spoke to the doctor about my referral to a Cambridge hospital. And that I won't need to be referred any more because we had decided that it wouldn't be fare to me to be  moved all round the country to different hospital's because no one would know what they were doing with me. And that's why I have decided along with my Mum and Dad to stay here for for my treatment.

It started when my Dad came to spend the last week of my Christmas holiday with my Mum and I. When he was a bit moody with everyone. I guess everybody has bad days and good days but Mum and I bore the brunt of it. I mean he was tired. Anyway enough talking about my Dad. lets talk about the rest of the week. On Friday morning my Dad and I went to get a bright Greene yellow jacket for when I go out at night or for when I'm coming back from Strode in the dark. Anyway when we got back home we saw one of the people who lives next door from us in March. So we invited then over for dinner because Dad was cooking.  So they came over for dinner on Friday. So that was that day On Saturday Mum and Dad decided to let me have one more night in March but my Mum, Dad and I had to go back to Kent on Sunday because first thing on Monday morning I had to go to the doctors for a dissection about my treatment and what happends next.But what I can't beleave is ...

Mums gone to get Paul from the station because hes spending the week with us before taking me back home to Kent. Paul has just sent Mum a message to say that his train will be late bu 8 minets and he asked her not to pick him up from the station. But it was to late because Mum had already gone and she had left her phone here.

Mum had an email from the manager of the Coach House in Kent Zoe Lee. Which I got annoyed at because she knew I was holiday for four weeks, But on the other hand. I'm grateful to her for emailing because it gave Mum a chance to email her back about my doctors appointment on the seventeenth of January. Oh by the way I've remembered the name of the first film Mum and I watched last night it's called IN America.

My Mum and I have tried to watch 2 films so far and so far Bridget Jones was the only one we found to be even remotely appropriate for us. Before we started watching Bridget Jones, we started watching this really strange film. Which seemed to be about drugs.

last night I was really angry because I watching a documentary on the worlds fatest man and the reason as to why I was so angry was the fact that he had his care got taken away from him. before he lost the weight. It got taken away from the social services.

Today I went on Skype and I spoke to my youngest cousin to ask how her first day at h er new school went because she had to move from her school because of problems she had. I can't tell what problems cause I don't know them and I wouldn't want to tell anyway because they are nothing to do with me. Anyway she seemed to enjoy her new school which is the main thing. I also spoke to my Aunty on Skype as well, Mum showed her the hand bag that my grandma gave her for Christmas because my Mum dose not like it. So she was trying to flog it onto my Aunty. Which I find really hilarious that we both don't like our Christmas presents.

Please forgive me this is my first Blog ever. So I'm not quite sure what to say, I'll start with my Christmas well I had a very perplexed Christmas because as soon as I got home, I had to go into hospital and have four units of blood because I was anaemic. So my sister and my Dad had to put off coming up until after Christmas. The reason being my sister had a chest infection and that wasn't good for me because if I'd got it while I was trying to get better from being in hospital I would end up straight back in there. Anyhow on a happy note my family and I celebrated Christmas on New Years day instead but my Mum and I did have a good day just the 2 of us because I was to ill to do anything else. When my sister and Dad came up they stayed for 2 nights. On New Years day we had a lovely Christmas dinner which consisted of roast beef, greens, potato's and turkey. For pudding we had crumble and banoffi pie. After dinner my Dad loaded the dirty dishes into the dish washer ...